Our Impact 2022

The mission of the Eagles Autism Foundation is to support the highest quality and most impactful autism research and care to improve the lives of affected individuals and families now, as well as foster the acquisition of knowledge, technologies, and discoveries that will bring new opportunities in the future. While we remain steadfast in our commitment to fund the most innovative research, we also recognize the immediate need to serve individuals through the community grant program. Stay tuned for updates regarding our 2023 funding process.

2022 Panelists

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Dr. Emanuel DiCicco-Bloom

Rutgers Robert Wood Johnson Medical School

Professor, Department of Neuroscience and Cell Biology, Chair of the NIH Developmental Brain Disorders study section, member of the Society for Neuroscience Audit Committee, serves on Autism Science Foundation and the American Brain Coalition panels

Dr. Craig Erickson

Dr. Craig Erickson

Cincinatti Children’s Hospital

Associate Professor, UC Department of Psychiatry and Behavioral Neuroscience

Josh Ewen

Dr. Joshua Ewen

Kennedy Krieger Institute

Director, Clinical Neurophysiology Clinic and Laboratory

Dr. Susan Hyman

Dr. Susan Hyman

University of Rochester Medical Center

Professor, Department of Pediatrics; Developmental- Behavioral Pediatrics, American Board of Pediatrics

Suzannah-Iadarola

Dr. Suzannah Iadarola

University of Rochester Medical Center

Associate Professor – Department of Pediatrics, Developmental & Behavioral Pediatrics (SMD) Senior Instructor of Pediatrics

Dr. Kenneth Kwan

Dr. Kenneth Kwan

University of Michigan

Associate Professor of Human Genetics Research Associate Professor of Michigan Neuroscience Institute (MNI)

Dr. Eric Levine

Dr. Eric Levine

University of Connecticut School of Medicine

Professor of Neuroscience, Associate Director, Neuroscience Graduate Program

Matthew Maenner PHD

Dr. Matthew Maenner

Center for Disease Control and Prevention

Epidemiologist, Surveillance Team Lead

CHIARA MANZINI, PHD

Dr. Chiara Manzini

Rutgers Robert Wood Johnson Medical School
The Child Health Institute of NJ

Associate Professor of the Department of Neuroscience and Cell Biology

Dr. Eric Morrow

Dr. Eric Morrow

Brown University

Mencoff Family Professor of Biology, Professor of Brain Science, Professor of Neuroscience, Professor of Psychiatry and Human Behavior

Dr. Tomasz Nowakowski

Dr. Tomasz Nowakowski

University of California San Francisco

Assistant Professor, Neurological Surgery
School of Medicine; New York Stem Cell Foundation, Robertson Neuroscience Investigator

Dr. Damon Page

Dr. Damon Page

The Scripps Research Institute

Associate Professor, Department of Neuroscience

Dr. Susan Powell

Dr. Susan Powell

University of California San Diego

Adjunct Professor, Psychiatry

Dr. Celine Saulnier

Dr. Celine Saulnier

Neurodevelopmental Assessment and Consulting
Services

Founder; Clinician-Scientist

William Wadsworth

Dr. William Wadsworth

Rutgers Robert Wood Johnson Medical School

Professor; Department of Pathology & Laboratory Medicine

Zachary Warren

Dr. Zachary Warren

Vanderbilt Kennedy Center

Director, Division of Developmental Medicine, Vanderbilt Department of Pediatrics; Professor of Pediatrics, Psychiatry & Behavioral Sciences, and Special Education; Executive Director, VKC TRIAD

Benjamin Yerys

Dr. Benjamin Yerys

Children’s Hospital of Philadelphia

Associate Professor; Psychiatry, Psychologist; Department of Child and Adolescent Psychiatry and Behavioral Science, Director; Data and Statistical Core, Center for Autism Research, Director; Transition to Adulthood, Director; Clinical Translational Core, Intellectual and Developmental Disabilities

Lonnie Zwaigenbaum

Dr. Lonnie Zwaigenbaum

University of Alberta, Canada

Professor & Director of Autism Research Center

Children's Hospital of Philadelphia

Hakon Hakonarson – Unveiling the Molecular Pathways and Mechanisms of ADGRB3 in Autism in search for Future Innovative Precision-Based Therapies

Dong Li – Getting to the splicing core of syndromic autism

Veronique Lefebvre – SOX5-related autism spectrum disorder

Boston Children's Hospital

April Levin – Signal vs. Noise: Objective Measurements of Sensory Processing in Autism

Hebrew University

Haitham Amal – The role of nitric oxide in the pathology of autism spectrum disorder caused by the SHANK3 and MEF2C mutations

Cleveland Center

Antoine Louveau – Restoring lymphatic function to improve social behavior in Autism Spectrum Disorders

UNC Center for Research

Ben Philpot – Investigation of UBE3A/HERC2 Synergy as a Driver of Dup15q Syndrome Pathogenesis

Clare Harrop –Using Multimodal Assessment to Examine Developmental Profiles and Sex Differences in the Eating Behaviors of Autistic Children

IWOW University

Stefan Strack – Primary PKA dysregulation in Marbach-Schaaf Neurodevelopmental Syndrome

Post Doctoral Fellowships

Children's Hospital of Philadelphia

Dana Layo-Carris – Elucidating neural mechanisms resulting in autism-like syndrome

Drexel University

Megan Bragg – Prenatal cardiometabolic health practices and child autism-related outcomes

Kencrest Logo

Kencrest

Led by Melanie Pellecchia, PhD at the Perelman School of Medicine at the University of Pennsylvania, the two-year study concluded that children with autism made progress after participating in Project ImPACT, previously funded by Eagles Autism Foundation. In response, the Philadelphia Early Intervention program implemented this unique coaching program for children diagnosed with autism, or on the spectrum. Early Intervention providers such as KenCrest were able to capitalize on this data and to join Project ImPACT in training therapists to expand reach to as many young children and families as possible. KenCrest and Project ImPACT have the potential to dramatically improve the services received by families of young children with ASD in Philadelphia, and to significantly improve their long-term outcomes.

Kinney Center Logo

The Kinney Center

The Kinney Center for Autism Education and Support will offer an 8-week-long program twice a year to educate caregivers of newly diagnosed children with autism (up to 7 y.o.) or caregivers suspecting autism but without an official diagnosis, and help identify resources to support their child. The program will offer a support group and training on such topics as communication with autistic children, best activities, types of predictable routines providing most support and how to incorporate them and other necessary accommodations to allow neurotypical members of the family to function. We envision caregivers attending with their children; while adults are getting training from a clinical staff member, the children will be entertained and educated by Kinney students, trained in working with children on the spectrum. To incentivize and facilitate attendance, we will offer a simple dinner to participants. For children, the meal will allow for naturalistic modeling and teaching from trained staff members to assist in healthy engagement.

Salus University

Salus University

Salus’ Speech Language Institute/SLI provides a variety of therapeutic services to individuals with autism spectrum disorder/ASD, focused on increasing communication skills, independence, and quality of life. Services include family-focused assessments, treatment, external service coordination, and education on adaptive technology. Skills involve attention and listening; play; understanding language and using expressive communication; social interaction; and non-verbal communication. Services are free and attract many underserved families from nearby Philadelphia and Montgomery counties. Improving Communication for the ASD Community requires additional communication devices, software, and supplies to serve a growing target population. The SLI model relies on graduate student clinicians supervised by a full-time certified, licensed Speech Language Pathologist, constant Quality Improvement processes, and community input through surveys and meetings with client/families and community collaborators.

Salus University

Special Olympics PA

Special Olympics Pennsylvania (SOPA) and the Cities of Inclusion project is focused on taking a comprehensive citywide approach in our goal to ensure Philadelphia is a city where people with disabilities can lead healthy and fulfilling lives as respected members of an inclusive society. The focus areas we selected, education, employment, health, housing, and access to information & services, encompass our approach towards making Philadelphia a City of Inclusion.

Arc Alliance

The Arc Alliance Advocacy Services

Independence shouldn’t be a privilege reserved only for those who can afford it. Unfortunately, for many individuals with autism, the cost of independence is simply unaffordable. There are significant funds available for services and tools for people with autism. The qualifier for funding is a one-time, Occupational Therapy (OT) Assessment that costs $500 on average. This out-of-pocket fee is required to determine eligibility for funding programs but is not a covered expense. For those with financial hardships it is a major obstacle to critical services. Unlocking Independence will eliminate the barrier to funding for individuals with autism and allow them to successfully participate in their community.

Variety Club

The Variety Club

VarietyWorks serves young adults ages 14+ who present with autism & intellectual disabilities as they train to ultimately obtain meaningful employment of their choice. Our Theory of Change states that when young adults with disabilities have access to choices and engage in individualized instruction and employment experiences, they will become self-confident, independent, and better prepared for life. This individualized, unique program is based on our 77-acre campus, and serves individuals from the entire Delaware Valley. Funding would support enhancement of VarietyWorks, whose services are financially sustainable, but not resourced for expansion and enhancement. We seek to launch a second community mobile café, expand summer vocational program, and expand employer partnerships. Variety is an Eagles Care partner for 5 years, and one of the oldest nonprofits in the region serving this population.

Evidence-Based Practice Innovation Center

Evidence-Based Practice Innovation Center (Philadelphia Community Behavioral Health) –

The Evidence-based Practice Innovation Center is part of Philadelphia’s Community Behavioral Health, which was previously known as the Department of Behavioral Health and Intellectual disability Services. Ultimately, they work with the large network of Medicaid providers within the City of Philadelphia.  Part of the funding will be used towards sensory room and structural updates in order to best support the therapy taking place at the institution.  In addition, part of the funding will go towards LENA technology which produces robus and statistically valid dataset of speech, including English and Spanish.

Children’s Hospital of Philadelphia-Center for Autism

Children’s Hospital of Philadelphia-Center for Autism

Funding provided directly from Huddle Up for Autism event, “The Center for Autism Research (CAR) coordinates and supports research on autism spectrum disorder (ASD). CAR’s goals are to identify the underlying causes of ASD in order to develop effective treatments, and support individuals with ASD and their families by providing evidence-based resources and education.”

Popcorn For The People

Popcorn For The People

Popcorn for the people has a vision of Let’s Work For Good in order to create a world where any adult interested in working can find a career they enjoy; earn fair, competitive wages; and maximize their independence.  They envision a society where businesses appreciate all abilities, value a neurodiverse workforce and provide necessary supports.  With the Eagles Autism Foundation grant, more employment opportunities will be created for the neurodiverse population.